Join Our Community
Get Involved
At South Carolina Rare, there are different opportunities that may fit a wide variety of interests, time commitments, and experiences. If you have a question about any of these opportunities, please do not hesistate to contact us at SouthCarolinaRare@gmail.com or the Contact Form below.
Our Impact Areas
Resources
Click above to find resources including Rare Disease Information including Statistics, Organizations, and a Glossary defining common Rare Disease Terms/Phrases
Legislative Advocacy
Click above to find information on Federal and Statewide Congressional Bills affecting the Rare Disease Community
Clinical Trials & Research
Click above to find information about Clinical Trials and Research throughout South Carolina and the U.S.
Patient Stories
Involvement Opportunities
Newborn Screening
Click above to rediscover the importance of Rare Disease connections and advocacy by reading more about fellow SC Rare Disease Warriors
Click above to find information about Newborn Screening and how it helps to prevent thousands of delayed diagnoses each year
Click above to find information on Involvement Opportunities for all ages in the Rare Disease Space