Currently Open Opportunities
-
Applications are currently open for the Fall 2026 YARR Leadership Academy through August 31.The YARR Leadership Academy is a series of online classes offered to young adults (ages 18-30) in the rare disease community. The Fall 2026 cohort will focus on rare disease state policy priorities, advocacy opportunities, and leadership roles.
Opportunities for Children/Young Adults
16-30 year old rare disease advocates (patient/family member/close loved one) who are interested in legislative advocacy
15-25 year old advocates who are passionate about raising awareness of autoimmune diseases
High School or College Students interested in raising awareness surrounding rare diseases
An opportunity for rare disease patients under the age of 30 to share their story
An art competition with multiple mediums to choose from (visual art, photography, music etc.). Applicants must have a personal connection to the Rare Disease Community; applicants must be ages 4+
17+ rare disease patients enrolled in a full-time or part-time undergraduate or graduate program of study
Young adult advocates who are interested in rare disease advocacy on a global scale