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Involvement Opportunities

There are many different ways for rare disease advocates to become involved in the rare disease space. On this page, you will find opportunities for all ages from a variety of areas.

Currently Open Opportunities

Open Travel Reimbursements/Grant Opportunities​

  • Connections for Learning Grants applications (previously known as travel grants) are currently open to support in-person attendance for NBDF's 2026 Bleeding Disorders Conference

  • In-person (due April 12, 2026) and Virtual Scholarships (due June 21, 2026) applications to The Ehlers-Danlos Society 2026 Global Learning Conference are currently open

  • Travel Scholarship applications for the 2026 Annual SMA Conference are currently open

  • Registration for the 7th North American Huntington's Disease Young Person Camp happening on August 10-14, 2026 in Maryland is currently open (travel scholarships available)

Program Openings

  • The 2025-2026 PCORI Advisory Panels application/nomination cycle is now open and will close March 6, 2026. They are accepting applications for participants to join one of their four advisory panels including the Clinical Trials Advisory Panel, Patient Engagement Advisory Panel, Rare Disease Advisory Panel, and Comparative Clinical Effectiveness Research (CER) Advisory Panel

Scholarships/Awards

Opportunities for Children/Young Adults

16-30 year old rare disease advocates (patient/family member/close loved one) who are interested in legislative advocacy

15-25 year old advocates who are passionate about raising awareness of autoimmune diseases

High School or College Students interested in raising awareness surrounding rare diseases

An opportunity for rare disease patients under the age of 30 to share their story

An art competition with multiple mediums to choose from (visual art, photography, music etc.). Applicants must have a personal connection to the Rare Disease Community; applicants must be ages 4+

17+ rare disease patients enrolled in a full-time or part-time undergraduate or graduate program of study

Young adult advocates who are interested in rare disease advocacy on a global scale

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