Currently Open Opportunities
Open Travel Reimbursements/Grant Opportunities
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Travel grants available for The Coalition for Hemophilia B's 2026 Annual Symposium application due on January 5th, 2026
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In-person (due April 12, 2026) and Virtual Scholarships (due June 21, 2026) applications to The Ehlers-Danlos Society 2026 Global Learning Conference are currently open
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Registration for the 7th North American Huntington's Disease Young Person Camp happening on August 10-14, 2026 in Maryland is currently open (travel scholarships available)
Position Openings
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Columnist Opening for Pompe Disease News, a BioNews Column (opportunity for Pompe patients and caregivers) - position accepting applications until December 5, 2025
Scholarships/Awards
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Submissions for the National Center for Advancing Translational Sciences (NCATS) Rare Diseases Are Not Rare! 2025 Challenge are now open and due January 2, 2026
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The International Rett Syndrome Foundation Rett Sibling Scholarship are accepting applications until January 29, 2026
Opportunities for Children/Young Adults
16-30 year old rare disease advocates (patient/family member/close loved one) who are interested in legislative advocacy
15-25 year old advocates who are passionate about raising awareness of autoimmune diseases
High School or College Students interested in raising awareness surrounding rare diseases
An opportunity for rare disease patients under the age of 30 to share their story
An art competition with multiple mediums to choose from (visual art, photography, music etc.). Applicants must have a personal connection to the Rare Disease Community; applicants must be ages 4+
17+ rare disease patients enrolled in a full-time or part-time undergraduate or graduate program of study
Young adult advocates who are interested in rare disease advocacy on a global scale