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Involvement Opportunities

There are many different ways for rare disease advocates to become involved in the rare disease space. On this page, you will find opportunities for all ages from a variety of areas.

Currently Open Opportunities

Open Travel Reimbursements/Grant Opportunities​

Program Openings

  • ​The EveryLife Foundation for Rare Diseases are accepting applications for the #RAREis Scholarship until April 28th. This year, a total of 58 scholarships of $5000 will be awarded to individuals in the rare disease community who are pursuing higher education

Scholarships/Awards

Opportunities for Children/Young Adults

16-30 year old rare disease advocates (patient/family member/close loved one) who are interested in legislative advocacy

15-25 year old advocates who are passionate about raising awareness of autoimmune diseases

High School or College Students interested in raising awareness surrounding rare diseases

An opportunity for rare disease patients under the age of 30 to share their story

An art competition with multiple mediums to choose from (visual art, photography, music etc.). Applicants must have a personal connection to the Rare Disease Community; applicants must be ages 4+

17+ rare disease patients enrolled in a full-time or part-time undergraduate or graduate program of study

Young adult advocates who are interested in rare disease advocacy on a global scale

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