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Community Events Calendar
Welcome to Our Community Calendar! Here we will post events that may be useful to the South Carolina rare disease community. If you are a patient/community organization and would like to get your event added to this calendar, please contact us at SouthCarolinaRare@gmail.com or through the Contact Form below.
February 21, 2026
Charleston Mom Prom 2026
Location: Charleston, SC
Organization: Cystic Fibrosis Foundation - South Carolina Chapter
For More Information: Click Here
February 21, 2026
Fashion Breathes Life
Location: Charlotte, NC
Organization: Cystic Fibrosis Foundation - North Carolina Chapter
For More Information: Click Here
February 23, 2026
FDA Rare Disease Day 2026
Location: Virtual
Organization: U.S. Food and Drug Administration (FDA)
For More Information: Click Here
February 24 - 25, 2026
17th Annual Advocacy and State Legislative Days
Location: Columbia, SC
Organization: Bleeding Disorders Association of South Carolina (BDASC)
For More Information: Click Here
February 24 - 26, 2026
Rare Disease Week on Capitol Hill
Location: Washington, D.C. (travel reimbursements available)
Organization: EveryLife Foundation for Rare Diseases
For More Information: Click Here
February 27, 2026
2026 Rare Disease Symposium
Location: Columbia, SC
Organization: South Carolina Rare Disease Advisory Council (SCRDAC)
For More Information: Click Here
February 27, 2026
2026 Rare Disease Day at NIH
Location: Bethesda, MD or Virtual
Organization: National Institutes of Health (NIH)
For More Information: Click Here
March 1, 2026
Von Willebrand Disease Awareness Day & Celebration
Location: Greenville, SC (travel grants available)
Organization: Bleeding Disorders Association of South Carolina (BDASC)
For More Information: Click Here
March 7, 2026
Hope Blossoms Gala
Location: Charlotte, NC
Organization: Cystic Fibrosis Foundation - North Carolina Chapter
For More Information: Click Here
March 14, 2026
South Carolina Support Group
Location: Virtual
Organization: National Scleroderma Foundation
For More Information: Click Here
April 9, 2026
Intro to EveryLife Foundation For Rare Diseases - "How to Get Involved" Session
Location: Virtual
Organization: EveryLife Foundation For Rare Diseases
For More Information: Click Here
April 9, 2026
Epilepsy Caregiver Support Group
Location: Virtual
Organization: South Carolina Advocates for Epilepsy
For More Information: Click Here
April 9 - 12, 2026
Camp Brady at The Painted Turtle
Location: Lake Hughes, CA (travel grants available)
Organization: US Hereditary Angioedema Association
For More Information: Click Here
April 9 - 12, 2026
2026 Annual Symposium
Location: Las Vegas, NV (travel grants available)
Organization: The Coalition For Hemophilia B
For More Information: Click Here
April 11, 2026
South Carolina Support Group
Location: Virtual
Organization: National Scleroderma Foundation
For More Information: Click Here
April 17-19, 2026
2026 Adult Connection Symposium
Location: Greenville, SC (travel grants available)
Organization: Bleeding Disorders Association of South Carolina (BDASC)
For More Information: Click Here
April 21, 2026
Epilepsy Patient Support Group
Location: Virtual
Organization: South Carolina Advocates for Epilepsy
For More Information: Click Here
April 25, 2026
Columbia Great Strides 2026
Location: Cayce, SC
Organization: Cystic Fibrosis Foundation - South Carolina Chapter
For More Information: Click Here
April 25 - 26, 2026
Epilepsy Awareness Day at Walt Disney World
Location: Orlando, FL
Organization: Epilepsy Alliance Florida
For More Information: Click Here
May 2, 2026
Greenville SC Great Strides 2026
Location: Greer, SC
Organization: Cystic Fibrosis Foundation - South Carolina Chapter
For More Information: Click Here
May 9, 2026
Walk to Defeat ALS Lowcounty
Location: Mount Pleasant, SC
Organization: The ALS Association
For More Information: Click Here
May 9, 2026
South Carolina Support Group
Location: Virtual
Organization: National Scleroderma Foundation
For More Information: Click Here
May 16, 2026
Charleston Great Strides 2026
Location: Mount Pleasant, SC
Organization: Cystic Fibrosis Foundation - South Carolina Chapter
For More Information: Click Here
May 16, 2026
13th Annual STEP For Bleeding Disorders 5K Walk/Run
Location: Columbia, SC
Organization: Bleeding Disorders Association of South Carolina (BDASC)
For More Information: Click Here
June 11, 2026
Intro to EveryLife Foundation For Rare Diseases - "How to Get Involved" Session
Location: Virtual
Organization: EveryLife Foundation For Rare Diseases
For More Information: Click Here
June 12 - 13, 2026
Hello Conference & Annual Meeting
Location: Greenville, SC
Organization: Bleeding Disorders Association of South Carolina (BDASC)
For More Information: Click Here
June 13, 2026
South Carolina Support Group
Location: Virtual
Organization: National Scleroderma Foundation
For More Information: Click Here
June 25 - 28, 2026
2026 Annual SMA Conference
Location: Orlando, FL (travel scholarships available)
Organization: CURE SMA
For More Information: Click Here
June 29 - July 2, 2026
Camp CoAg
Location: Eastover, SC (travel grants available)
Organization: Bleeding Disorders Association of South Carolina (BDASC)
For More Information: Click Here
July 9, 2026
Epilepsy Caregiver Support Group
Location: Virtual
Organization: South Carolina Advocates for Epilepsy
For More Information: Click Here
July 11, 2026
South Carolina Support Group
Location: Virtual
Organization: National Scleroderma Foundation
For More Information: Click Here
July 21, 2026
Epilepsy Patient Support Group
Location: Virtual
Organization: South Carolina Advocates for Epilepsy
For More Information: Click Here
August 8, 2026
South Carolina Support Group
Location: Virtual
Organization: National Scleroderma Foundation
For More Information: Click Here
August 10 - 14, 2026
HDYO's North American Huntington's Disease Young Person Camp
Location: Camp St. Charlest, MD (travel scholarships available)
Organization: Huntington's Disease Youth Organization
For More Information: Click Here
August 13, 2026
Intro to EveryLife Foundation For Rare Diseases - "How to Get Involved" Session
Location: Virtual
Organization: EveryLife Foundation For Rare Diseases
For More Information: Click Here
August 13 - 15, 2026
78th Annual Bleeding Disorders Conference
Location: Orlando, FL (travel scholarships available)
Organization: National Bleeding Disorders Foundation (NBDF)
For More Information: Click Here
September 12, 2026
South Carolina Support Group
Location: Virtual
Organization: National Scleroderma Foundation
For More Information: Click Here
September 25, 2026
Par for the Clot
Location: Greenville, SC
Organization: Bleeding Disorders Association of South Carolina (BDASC)
For More Information: Click Here
October 8, 2026
Intro to EveryLife Foundation For Rare Diseases - "How to Get Involved" Session
Location: Virtual
Organization: EveryLife Foundation For Rare Diseases
For More Information: Click Here
October 8, 2026
Epilepsy Caregiver Support Group
Location: Virtual
Organization: South Carolina Advocates for Epilepsy
For More Information: Click Here
October 9-11, 2026
2026 Fall Advocacy & Medical Symposium (FAMS)
Location: Myrtle Beach, SC
Organization: Bleeding Disorders Association of South Carolina (BDASC)
For More Information: Click Here
October 10, 2026
South Carolina Support Group
Location: Virtual
Organization: National Scleroderma Foundation
For More Information: Click Here
October 20, 2026
Epilepsy Patient Support Group
Location: Virtual
Organization: South Carolina Advocates for Epilepsy
For More Information: Click Here
November 14, 2026
South Carolina Support Group
Location: Virtual
Organization: National Scleroderma Foundation
For More Information: Click Here
December 10, 2026
Intro to EveryLife Foundation For Rare Diseases - "How to Get Involved" Session
Location: Virtual
Organization: EveryLife Foundation For Rare Diseases
For More Information: Click Here
December 12, 2026
South Carolina Support Group
Location: Virtual
Organization: National Scleroderma Foundation
For More Information: Click Here
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