For Healthcare Professionals/Industry Partners
Become Involved
Hello!
We are so excited to be in collaboration with fellow stakeholders in the rare disease space. We are open to work with others to help raise awareness and improve community for the South Carolina rare disease community. If you are interested in collaborating at an event or would like to learn more information, please contact us at SouthCarolinaRare@gmail.com or through the Contact Form below. We look forward to working with you. Thank you!
Resources
A guide to help guide decision-making when suspecting a Rare or Ultra-Rare Diagnosis
Opportunities for CME credit through Rare Disease Courses from NORD
A national study focusing on the barriers faced by underrepresented Rare Disease Communities
A study highlighting the impact of delayed diagnoses in the Rare Disease Community
An informative guide for all topics related to understanding ICD Codes and their importance in diagnosis and tracking health outcomes
